Brothers and sisters, we are losing. We can argue about the reasons why (reality vs. perception); we can argue about the biased media; unreasonable expectations; poor self-promotion. But, the brutal truth is many special needs individuals and families are afraid to call us when they need help. They are afraid we will hurt them. They are afraid we will judge them. They are afraid we will take their children away. That is both tragic and unacceptable to me, and I hope it is unacceptable to you too.
This is difficult for me to say, but in all honesty, I'm afraid too. I am a high ranking officer in my police department. I am in charge of training. I teach this stuff. And, as a dad, I'm afraid too. You--we--are granted immense power to affect the trajectory of people's lives. That scares them--us.
We are brothers. I would bleed for you. I am calling in my chips and begging you to hear me out. You will meet our families at our lowest points. Understand the courage and sheer desperation that is required, given their utter fear of us, to pick up the phone and dial 911 during a crisis. You will be tempted to judge us-- to "otherise" us. Please don't. I am a good father. My wife is a wonderful mother. We enjoy the luxury of an incredible support structure. And, if you were to judge me based on any of the four (YES, FOUR) times I have lost my son, you could make a case that I am completely unfit.
Families like mine operate on Level 10 Alert Status twenty-four hours per day. I have not sat and enjoyed a meal with my wife at a family picnic in 11 years. We take turns keeping watch over my son. We sleep in shifts. We sleep with one ear open for the sound of the chain latch on our back door-- not because we are afraid of burglars coming in, but because we are afraid of our son breaking out. We are constantly aware of the ignorant stares and judgment of strangers. We have to carefully plan and coordinate even the shortest trips to the supermarket. This strains us.
I'm not asking for your sympathy. This is not a tragedy. Leukemia is a tragedy. This is a challenge. And, sometimes our best isn't good enough. Sometimes we need help. Sometimes we need you.
I am your biggest fan. I am your loudest advocate. I am screaming from the rooftops that you are, without equivocation, The Good Guys. But it's so fragile. One negative headline spreads like wildfire and becomes the accepted perception. Open your hearts and minds, and learn about our families. Approach us with genuine curiosity and empathy. You have no idea how much we need you."
Check out the Travis Alert Bill my friend In Washington State has proposed for training for all emergency aid staff to have for people with disabilities. I wish you the very best!
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ReplyDeleteI too am the father of an almost 10 year old autistic boy. He's non verbal.
ReplyDeleteI have fears...the fear that he'll start running away again. If you've ever chased your child down the double yellow line of the road on which you live you'll understand.
My greatest fear is that after I'm gone, and my little boy is no longer little that he''ll have the unfortunate opportunity to meet a member of law enforcement...the one that doesn't understand. The one that views my son as uncooperative and deals with uncooperative people that don't respond to their questions, their directives, their commands in a manner that that officer can accept...and my son loses his life to that officer's ignorance, or perhaps better described as his lack of training.
Thanks for bringing this to the attention of your law enforcement family. I could never do your job as a police officer. I do the same job as you as a parent...the best I can.
Since 1998, I have given presentations to police, fire, EMS in local communities in Pittsburgh, PA. I will continue to do so. One of my very good friends got legislation passed in PA for officers to have this training. I am available for any department who wants to be informed about autism.
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